The I-CAH Registry provides a means of connecting clinical and research centres around the world within a virtual environment and allows these experts to enter standardised information that will improve clinical practice, research and understanding of Congenital Adrenal Hyperplasia. For further information please visit the I-CAH I-CAH website.
The I-CAH Registry is hosted by the I-DSD registry.
I-DSD & I-CAH update (presentation at DSD working group at ESPE 2014)
Prospective registry users can apply for access through the link 'Create A New Account'.
There are currently several types of User.
|Clinical User||Often part of team in a centre with one Centre Lead. Clinical users can upload and edit cases but only the centre lead can delete cases and maintains responsibility for all clinical data in their centre. Clinical users can view the full dataset of cases they upload but only the core dataset of all other available cases.|
|Network User||Can search other user’s profiles for networking reasons. No access to any records.|
|Centre Lead||A clinician with clinical responsibility for all cases added to the registry in their centre. Only centre leads can delete cases from their centre.|
Access to the Registry is routinely suspended after 12 months of inactivity.
For all enquiries relating to the Registry and Network, please contact Jillian Bryce
|Dr Jillian Bryce|
|I-DSD/I-CAH Project Manager|
|School of Medicine|
|University of Glasgow|
|Level 0, Zone 1, Office Block (Paediatrics)|
|Queen Elizabeth University Hospital Campus|
|Govan Road, Glasgow, G51 4TF, UK|
|Tel: +44 (0) 141 451 5843|